In this disease, hands and legs become weak, treatment is done by injection of Rs 18 crore, these are the symptoms - Newztezz Online


Friday, September 15, 2023

In this disease, hands and legs become weak, treatment is done by injection of Rs 18 crore, these are the symptoms

Spinal Muscular Atrophy: Small child Kanav was suffering from spinal muscular atrophy. He had this disease at the time of birth. Due to this disease his muscles started becoming weak. Even the hands and legs were not working properly. Now Kanav has been treated.

Kanav Jangra, a child living in Delhi, was suffering from a dangerous disease called Spinal Muscular Atrophy. This is a disease whose treatment is so expensive that a common man cannot even think about it. But people supported Kanak a lot. The amount spent on treatment was collected through online crowdfunding. About Rs 11 crore was collected from this. The injection required to treat this disease costs Rs 18 crores, but the pharmaceutical company gave the injection for only Rs 11 crores and Kanav's life was saved. Now you must be wondering what kind of disease is this whose single injection costs Rs 18 crore. Let us tell you about this in detail.

Spinal muscular atrophy disease is a genetic disease. Which passes from parent to child. The only treatment for this disease is Zolgensma injection, which costs Rs 18 crore. This is the reason why most of the children suffering from this disease die. Spinal muscular atrophy occurs as soon as the disease is born. It is not treated with any medicine.

Spinal cord gets damaged

Due to this disease the muscles of the child's body start becoming weak. Hands and legs stop working. This disease starts damaging the child's nerve cells as well as the spinal cord and due to this, it becomes difficult to walk and even talk to someone. In severe cases, this disease also affects the ability to breathe, which can later lead to death.

Why does this disease occur?

Dr. Ankit Kumar, resident at GTB Hospital, says that this disease is caused by missing genes. Passes from parent to child. Its only treatment is Zolgensma injection. Which is manufactured by an American pharmaceutical company. Spinal muscular atrophy is so dangerous that it can make the child completely disabled. Its symptoms also start appearing in the beginning itself. Although the cases of this disease are very rare, but if someone gets it then it becomes very difficult to save his life. In most cases, symptoms of spinal muscular atrophy start appearing shortly after the birth of the child.

These are the symptoms

weakness of arms and legs

difficulty walking

inability to swallow food

respiratory distress

muscle pain

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