A US-origin citizen has donated Rs 11.5 crore for the treatment of a child in Kerala . The information of the person is secret, who helped such a huge amount for the treatment of Spinal Muscular Atrophy (SMA) Type-2 of a child. Due to this disease, the movement of the body stops and if it is not treated on time, it also reduces the life span. For its treatment, doses of Zolgensma are applied, which cost Rs 17.5 crore and it takes 20 days for this injection to reach India.
Nirvaan's parents, Sarang Menon and Aditi Nair raised five crore rupees through crowdfunding, where 50000 people contributed. The doctor told that the cost of one dose of the medicine used in the treatment of his child is Rs 17.5 crore. Later, Nirvan's family told in one of their Facebook posts that they have received an amount of $ 1.4 million from an unknown person, which is 11.5 crores in Indian currency. This will help us a lot in the treatment of Nirvana. In the post made by the family, it has been said that there are still angels in the world, who come forward to help the needy.
Spinal muscular atrophy treatment is very expensive
According to media reports, seeing the child's condition getting serious and after being told by the doctor that its treatment is very expensive, the family members created two crowdfunding accounts on platforms like Milap and Impactguru. Such a family is from Kerala, but is living in Mumbai. The doctor told them that the child has to be treated through gene replacement therapy, which is very expensive. A patient with such a complaint is given a dose of Zolgensma, which costs Rs 17.5 crore. This medicine is manufactured by a company named Novartis and it may take 20 days to reach India.
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